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'Closing the Kidney Gap' Deliberative mapping exercise
Method(s) Used
Name of person who posted the project:Edward Andersson
Location of project:England
Date when the project started:2002
Date when the project ended/project ongoing:2002
Background to project:This process, run in 2002 is one of the few applications of the Deliberative Mapping Methodology to date. Deliberative mapping was developed by Academics in England as away of reconciling expert input into participation processes with complicated topic areas without the experts dominating the discussions.Purpose of project:It's purpose was twofold, firstly to explore the 'kidney gap', that is the question of how to reduce the gap between the number of people who are waiting for kidney transplants and the much lower number of donor kidneys available. This is a crucial challenge facing health care providers and one which lacks clear cut answers. For this reasons it was important to get a measured public view on the options.Secondly the project aimed to develop and trial the Deliberative mapping methodology. Project activities:34 citizens from North London of different ages, ethnicities and socio-economic backgrounds were recruited to participate in the exercise, along with 17 specialists from a variety of relevant organisations and disciplines.Citizens and specialists were tasked with learning more about potential options for dealing with the kidney gap and assessing their performance against a range of criteria. The different groups registered similar preferences: technology-intense options like xenotransplantation scored badly while preventive care and improvements to existing services scored highly. Project results:The citizens involved expressed a feeling of ownership over the results of the process. They valued the opportunity to learn, have access to information and meet specialists in order to engage with the issues. The specialists felt that they learned about the citizens' ability to participate in scientific and technical decision-making.Contact details:Dr Andrew StirlingSenior Lecturer, SPRU The Freeman Centre, University of Sussex, Brighton, BN1 9QE Telephone: 01273 877118 Fax: 01273 685865 Email: A.C.Stirling@sussex.ac.uk |
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